Questions come up when you are living in this ‘after.’ Not about your diagnosis, but mid-scroll of a new trial report on the shifting standard of practice for endometrial cancer — your exact profile — your gut frames the question before your brain is even fully engaged: should I be on that? And even though you are actively trying to shift from living in ‘patient’ mode to living your full life, the rabbit hole of research opens, and you’re off — chasing a question that, on paper, might have been better answered two years ago.
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Epi(c) mutations
As I get more used to living with a diagnosis that means cancer risk will always be part of my everyday life, I’m learning more about what makes my specific profile unique. This latest research quest was triggered by my appointment at the High Risk Breast Clinic this week. My doctor’s interest was focused — I’m her first Cowden phenotype with no genotype. She’s my sixth oncology specialist and the eighth member of my core care team.
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