When I was first diagnosed, I was going through a detailed mammogram diagnostic process as well. Mine was the 1 in 10 pulled for recall, and the tomosynthesis showed cysts, prompting a recommendation for an additional ultrasound. In the end, it was all summarized as ‘bilateral simple and complex cysts, benign.’ A relief, but in the moment, it definitely felt like waiting for the other cancer shoe to drop. I’m learning that a CLS diagnosis is a little bit like déjà vu.
Read moreTag: Cowdens Syndrome
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So this is what “normal” looks like.
I’m not sure where the last six months went. Well, I do know, but it surprises me that I’ve been less inclined to update here. For the year ahead, I’m setting the intention to keep this journal more current.
So what’s new? Both my Hereditary Cancer Predisposition Panel and Developmental Disorders Panel returned a ‘clean’ status on all counts. My most recent blood draw saw all my markers in the ‘normal’ range for the first time in two years, including iron and ferritin—two important markers for anyone training for longer distance races. These results are enough for my medical geneticist to want to investigate further—my clinical presentation doesn’t match my genetic profile, and that piques the interest of any researcher.
What this all means for my running is mostly good.
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Piecing together survivorship
Frustration … that’s what the last few weeks have felt like. On the one hand, my last thyroid biopsy came back benign, … breathe. My March CT scan was clear, … breathe. My genetics testing is in process and likely to confirm I have the PTEN mutation, one more piece of the puzzle falling into place … breathe.
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Running from hysteria 